Here are some of our own children that have been affected by AFM

Braden Scott, age 7, was affected in 2016.  He loves video games, Legos, Harry Potter and his brother.  Braden is unable to swallow, breathe independently or use his right arm.

Cambria Annabella Tate, age 4, was affected in 2016.  She loves to use her imagination and adores playing with her LOL dolls.  Cambria is quadriplegic incomplete.  She is currently undergoing heart testing due to her heart slowing to below normal levels while asleep.

Sam Langol, age 3, was diagnosed with AFM in 2018. All four limbs have been affected. Sam loves his dog, Scotchy, his cat, Stoli and adores his big brother, Jack. He’s a big fan of the Hulk and Lightning McQueen.

Hayden Matthew Bellomy, age 7, was diagnosed in 2016. His muscles started to go flaccid on October 20, 2016.  By October 21st, he could barely move anything.  Hayden is now stable.  He currently has a trach and uses a ventilator 24/7. 

Annadelle Faulkner, age 5, was diagnosed in 2018. She was paralyzed from the neck down. She has regained movement in most of her body except her left anterior tibialis. She is currently in a wheelchair and still extremely weak. Annadelle loves gymnastics, swimming, unicorns, and anything purple! 

Kayla Marie Rose Wong, age 5, was diagnosed in 2016. She is quadriplegic from the shoulders down. Kayla enjoys watching PJ Masks and Paw Patrol. She loves zombies, spiders and all things Halloween related. She is a huge fan of Spiderman because during her numerous hospital stays she was visited by Spiderman (Ricky Mena Heart of a Hero).

Mason L. Smith, age 18, was diagnosed in 2017. He is paraplegic with both sensory and motor deficits. Mason is currently a college student at Texas A&M University and intends to become an Attorney. In the words of Mason: “It is never easy navigating a walking world from the confines of a wheelchair.  Summoning every ounce of courage I could muster, I rolled back into my high school and back into my life.”



Alexandre Doyon was affected in 2018 at the age of 4. He became completely paralyzed, except for fingers and toes and also incurred respiratory issues. After one year of intensive rehabilitation therapies, Alexandre (now 5 years old) has regained some function in all 4 limbs. He is able to walk with a walker for approximately 50 meters.

Alexandre loves swimming and playing Mario Brothers. A perfect evening would be eating pizza, followed by a Harry Potter movie while eating chocolate.